UnTouchable

How we write stories

Every story here is about a real person, and it is about their health. That is private unless they decide otherwise. These are the rules we follow so that we only ever repeat what someone chose to say.

Whose stories we tell

People telling their own story. Most stories come from a person talking publicly about their own health — in an interview, on their own social media, in a book, on a podcast or in a statement.

Families, after a death. A family or estate can share someone’s story publicly after they have died.

Families, when someone can no longer speak. Some conditions take away the ability to tell your own story — advanced dementia, aphasia, a severe brain injury. We will tell that story only if the family made a deliberate public statement in their own words, meant to be public. We write from that statement, not from news coverage of it, and we add nothing about how the person is now.

Someone close, after a death. A friend who was there may tell their own story of it, once considerable time has passed. We use only the name they use, add nothing to what they said, and say nothing about anyone living. We are stricter still when the condition is one that has been used against people.

Never a child’s health. We do not publish anything about the health of a living child, from anyone. An adult looking back on their own childhood is different: that is their story, and theirs to tell.

Where a story comes from

What we leave out

If we get something wrong

Anyone can ask us to correct a story or take it down — the person it is about, someone who represents them, or a reader. You do not need an account.

When we take a story down, it goes from every page on the site at once: the story itself, the condition pages, search, and the lists of related stories.

Request a correction or removal