UnTouchableHow the data is used
You can read everything on this site without an account, and without telling us anything about yourself.
If you choose to track your health here, you are trusting us with something private. This page says what we keep, who can see it, and what you can say no to.
Your record is for you
We keep the conditions, symptoms and treatments you choose to record, your answers to check-ins, and your daily entries. We keep your year of birth, not your date of birth, and never your address.
Nobody else sees your record with your name on it. Not charities, not researchers, not advertisers. A small number of our engineers can reach the database to keep it running, and every administrative access is logged.
We show you what you recorded. We do not tell you what it means.
Five separate choices
We ask about each use of your data on its own. Saying no to one does not affect the others.
- Keeping your record for you. Needed for tracking to work at all.
- Anonymised research. Optional. Your answers join grouped figures about what helps people with your condition.
- Studies funded by companies. Optional, and off unless you turn it on. The same grouped figures, used in studies a company has paid for.
- Being contacted about studies. Optional, and off unless you turn it on.
- News and charity emails. Optional, and off unless you turn it on.
What research looks like
This is why the platform exists: to learn, from many people over time, what actually helps. These rules apply to every figure that leaves your own record.
- Grouped figures only. For example, the average symptom score for people on a particular treatment. Never one person’s answers.
- Never fewer than ten people. If a group is smaller than ten, its figures are held back, so nobody can be picked out of a small number.
- Never your own words. Notes and anything else you write yourself are never included, in any export, for any reason.
- Only people who said yes. Every figure is worked out from people whose choice covers that use, at that moment.
- Every export is recorded. Who took it, when, what they asked for, and under which choice.
Changing your mind
You can change any of these choices at any time in Settings. A change takes effect straight away. The next figure we work out, the next export and the next email already leave you out — not overnight, not at the end of the month.
Grouped figures that were already worked out before you changed your mind are not recalled. They were never about you alone, and they never had your name on them.
Charities and donations
The causes you follow and any donations you note are yours. Following a charity for a condition can say something about your health, so we never share it with the charity or anyone else. When you press Donate, we count the click against the charity. We do not record who you are.